PROSTATE CANCER/PATHOLOGIC FRACTURE: SHOULD YOU BE IN A STUDY

March 30th, 2009

Clearly, this depends on the study and the medical institution that’s taking part in it. One potential downside to participating in any study of a new drug or procedure is that the treatment you receive may be ineffective, or not as effective as treatment that’s already available—particularly if it’s a double-blind study and you get the placebo. Also, one reason scientists may be testing a drug is for any potential side effects.

However, there are many advantages to participating in a study. Medical studies are strictly controlled, with well-defined rules (participants can stop being in the study whenever they want) and review boards that include doctors, nurses, lawyers, scientists, clergy members, and laypeople. Often, people who take part in medical studies are followed more closely, and thus receive better medical care, than the general public—and usually at little or no cost. (Sometimes, if a medication proves helpful, participants are even given a free supply as a reward for their help!)

Participating in a study often means access to new drugs that aren’t yet available to others; you may get first crack at a new breakthrough. And many people who volunteer for a medical study say that they feel that they are doing something important—that their contribution will advance medical science, and that it ultimately will help other people.

“If they’re motivated and feel well, patients should always explore this option,” says a Johns Hopkins oncologist. “They shouldn’t give up. For many patients, being in a study gives them a new outlook and new hope.”